Luke is our fifth child and he was born with Hypoplastic Left Heart Syndrome. His life has been a roller coaster thus far. We want to share our experience with him for friends, family, and other HLHS families.
I am so grateful that Luke has made it to his first birthday. And he is doing so well! He is crawling, standing with furniture, clapping, and enjoying life. He no longer has oxygen. He does continue with the Sildenafil (Viagra) around the clock. I am hoping to quit that medication soon. His only real problem- and it's a big on- is that Luke does not sleep! He wakes up 6 times on a good night and 12 plus on a bad night. Unfortunately the last 3 nights have been bad nights. Sometimes I think I am going insane:)
I had no idea last year that Luke's life could be such a high quality. I feel that he has beat many of the odds. I am eternally grateful for modern medicine and talented physicians. I recognize that the future will hold more surgeries and other difficulties. But the today is better than I would have ever imagined!
Happy Birthday little Luke. These pictures are of Luke with his new walker (he walks with it pretty well), eating his first cake ever (Sophie made it for him), and eating the wrapping paper rather than ripping it off (the siblings unwrapped for him).