Before Surgery- no chest scars

Before Surgery- no chest scars

Wednesday, December 24, 2014

Luke loves firemen!
At Crispy Creme Donuts

Luke and his siblings with our new horse Buddy.
Halloween- with brother Taylor.
Tonight is Christmas Eve.  We just had a wonderful evening with family.  Unfortunately Luke ended up sick as we arrived home.  He just went to bed with a low grade fever, complaining of stomach pains.  I hope he is not too sick to enjoy Christmas tomorrow.

Luke has been scheduled for his Fontan- February 11, 2015.  He was supposed to have surgery January 7th but was rescheduled because I changed insurance companies.  They need to get pre approval before the hospitalization and surgery can occur.  We will go to Primary Children's hospital in SLC, Utah.  Two days before surgery he will have a doctor's appointment, chest x-ray, and blood work.  The next day is a cardiac catheterization and echocardiogram, and then surgery.  I was told to expect a stay of 7 to 10 days post operative.  I am supposed to keep Luke healthy until surgery.  So far, I've scored a big 0.  Wish us luck!
Enjoying the rides at the mall.

Thursday, February 27, 2014

Times Doth Fly

Time sure does pass by quickly. I have not blogged about Luke for almost a year now. That is good news! I want this blog to be about Luke's life with HLHS. Yet life for the past 2 years couldn't be better. Luke is growing, talking, running, playing, and as healthy as any of my other kids. He has had no hospitalizations, takes only Lasix and Asprin in the mornings, and interacts with our family and the world in a very appropriate way for his age. He is small (5th%) and he likes to be carried a lot. Yet he will run (short distances) and climb and he give wonderful hugs and kisses. His good health makes me happy. We have had summer vacations, celebrated his birthday and Christmas, and been involved in library and church groups. Luke does amazing in all of this. He is a boy full of love for life and those around him.