We have been home for five days and things are starting to go back to normal!
We visited the cardiologist in a Boise yesterday and things looks pretty good. They did a transthorasic echocardiogram, EKG, and physical check up. In the echo the fenestration (small hole between the new vena cava conduit and the atrium) had a pressure gadiant of 7-8. This is not unexpected because of the elevated pressures in the heart prior to Fontan surgery. However it is higher than ideal (hoping for a 5). There was no fluids leaking around the heart, which is a good sign. His oxygen saturations were about 92% so the cardiologist opted to stop oxygen. He decreased the lasix to once a day and said to only give pain medications when Luke is in pain. It has been about 30 hours since the last pain medication dose and Luke is fine, even laughing.
We still cannot submerge his incision or chest tube sites. He is sometimes acting lethargic, asking for bed at nap time and night. But I hear it is a good 4 weeks before post Fontan kids start to show improvements from prior to surgery.
It is wonderful to be a family together again. Thank you for all of the wonderful meals, mom getting my kids off to school, support,, and everything.