April 4- 1 day post Glenn

Today we got to the hospital at 8:15 a.m. During the night they had extobate Luke and worked on getting his fluid overload down. He's a little less puffy than last night. He opens his eyes just a little but they look quite hazy. His head tosses from side ti side almost continually. I wish he could calm down. Right now the IV team is putting on another IV so we can start pulling some central lines.

He still had 2 chest tubes and a mediastinal tube, a RA, an IJ, an EJ, foley catheter, oxygen via nasal cannula, two peripheral IVs, and his Pacer internal leads and all his external monitors. His medications via IV are nitroprusside (blood pressure med), morphine, dexmeddetomidine (anesthesia med), and milrinone (heart med). He's just had an IV try but it failed. They're trying again. Oh, I love this little boy.

When my father in law had open heart surgery he said that when he first woke up he thought he would die. Later he wished he could die. I suspect that is how Luke is feeling now. Here are some pictures of the morning.