Luke is our fifth child and he was born with Hypoplastic Left Heart Syndrome. His life has been a roller coaster thus far. We want to share our experience with him for friends, family, and other HLHS families.
Before Surgery- no chest scars
Monday, April 9, 2012
April 9- Sedated Echocardiogram
Luke is still on 1.5 liters of oxygen. This is not normal 7 days post-Glenn. They did a sedated echocardiogram today to try and find out if all blood flows are going as they should. Luke coud not eat 3 1/2 hours before the procedure. They gave Valium and ketamine to sedate Luke. He was fidgety throughout the whole procedure but he kept desaturating so they could not give him any more sedatives. Consequently they did not get a good echo.
Because the echo was inconclusive the surgeon has ordered a cardiac catheterization for tomorrow. This involves sedation and intubation. After the last cardiac cath Luke kept desaturating so much that they did emergency surgery. Also this will be five sedations in eight days. What a drug overload!
I had to stop typing for a while because Luke just threw up. He threw up all the milk and then yellow bile. I had a huge pile in my lap and had to shower and change. He has zofran going into the IV right now. He just fell asleep but they are going to come do a blood draw in about thirty minutes. This morning his blood magnesium, potassium, calcium, and creatinine levels were low. Depending on the lab results they will give electrolyte replacements and some packed red blood cells.
I'm probably going to be here all week.
Subscribe to:
Post Comments (Atom)
So sorry Mabry. I hoped this would be an easier recovery. Wish I was there to give you a break.
ReplyDeleteThose eyes speak volumes. "What are you guys doing to me? " he seems to be saying. He is a beautiful boy and you are a great mom. Don't get discouraged. We are all praying for your family and we love you so much. Laura
ReplyDeleteMabry I wish everyone's prayers and yearnings would make Luke all better. I hope knowing so many are thinking and praying it is at least helping ease your burden even slightly.
ReplyDeleteRemember Carrie is close by if you need her for anything!
Sweet boy...
ReplyDelete